Recognizing Rare Disease Day 2017

Today is Rare Disease Day, a day when families and researchers and organizations all over the world work to raise awareness for rare diseases, increase funding for research efforts and improve access to treatments for individuals with rare diseases.


Announcing The Pink Zebra Club

After a few months of reflection, conversation, and work, we are so excited to share with you the launch of The Pink Zebra Club, an organization dedicated to supporting the families of children with critical medical needs.


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