who we support
We support the families of babies with critical medical needs, rare disease, and those experiencing infant loss. Our programs seek to relieve the emotional, mental, and financial stress of families during unexpected and extraordinary times of need. While we organize many ongoing programs (such as NICU care packages), we also look to support families with a more specific, unique need. Individualized support might look like one on one mentorship, providing a financial grant for grief counseling or to help pay for funeral expenses, or support finding and connecting with the best available research labs or rare disease advocates.
Families experiencing a long term NICU admission with their newborn.
infant loss families
Families who’ve experienced recent infant loss or child loss.
rare disease families
Families with children with known or undiagnosed rare diseases.