Families at a time of great need
The Pink Zebra Club supports the families of children with critical medical needs and rare disease. We support families during long term NICU stays, through the often long diagnosis process, and after infant loss. Each year we partner with local hospitals in Rochester, NY, and our initiatives directly support families across the entire country.
We created The Pink Zebra Club shortly after the death of our first daughter, as a way to recognize and support other families like ours: those with children with critical medical needs, experiencing long term NICU stays, and those who are newly bereaved. We broadened our mission and vision to include a focus on undiagnosed rare disease three years later, when our son died from the same disease.
It's not how much we give but how much love we put into giving.
- Mother Theresa
See what's new
Each year our initiatives reach families across the country. Learn more about the unique ways we support parents and families, and what you can to do help.